Welcome to our site about our son Brodie Dick who will join our family on August 8, 2011 at 8:00. At 22 weeks we went in to find out if we were having a boy or a girl and we found out that we were having a boy but that he may have a birth defect. After an agonizing week we found out that our son had CDH (Congenital Diaphragmatic Hernia). CDH occurs when the diaphragm fails to fully form, allowing the abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births and a baby with CDH is born every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. This will be a journal of our journey and will allow our family and friends to keep up to date on what is happening with us and our son Brodie. Thanks for your prayers and support!
Saturday, September 10, 2011
Brodie had a good night last night and a good morning. He is almost back down to the oxygen level that he was at before the last setback Thursday night. I am flying solo at the hospital for a little bit while LaVona goes and gets the full hair treatment. I know that this will be good for her and she needs a little time away. I am sitting in the dungeon that is Brodie's hospital room. Since his last setback they have gone back to the lights off and quiet room policy. The layout of the NICU has rows of beds in an open room (which I call general population) and the rooms on the outer edges (I refer to them as solitary confinement or the suites depending on my mood). As I look out into general population I am jealous of the light and open air that they get to enjoy. The sickest babies get the suites so we live for the day we get to move out of here. I now understand why solitary confinement makes people go crazy. Hopefully today we can make some good progress on his oxygen. They have decreased his blood pressure medicine, his sedation medicine and are not giving his paralyzing medicine at the first sign of the slightest movement. Today they are also putting him back on feeds. He will be on a continous drip of breast milk. This is big step in the right direction buy also scares us because he had his biggest setback after they started his feeds the first time. We welcome every change in the right direction but we also are terrified because we all know at this point how sensitive he is and how things can change in a second. Make it a good Saturday and I hope that everyone has the same beautiful weather that we are experiencing. Prayers go out to all the people that are effected by all of the fires.
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3 comments:
Don't be jealous of 'general population'. Too much stimulation (lights, noise, more exposure to germs)isn't good for a sensitive Brodie. The feeding is fantastic news, altho, very stimulating as well. Everything is moving in the right direction. Go with it!
Love and light to you, Lavona and Brodie
Liz
Great new today, I find myself coming home and going to check my email first so I can see how Brodie is doing. He is never far from my mind, but you and LaVona are a very close 2nd in that department also.
After 27 years of special needs life, I'm so proud to hear that you are allowing her the time to take care of herself, but don't forget to take care of yourself also. We just came from hosting a respite night at our church for the special needs parents; it was such a wonderful night of fun and great to see parents go enjoy themselves for a bit without their family.
Our prayers will continue for Brodie.
JOY in CHRIST,
JOYce
thanking G-d for the calmness at the moment--praying for Brodie's continued progress. Faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1 May the LORD be with you and the family today. xxoo Fran
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