Welcome to our site about our son Brodie Dick who will join our family on August 8, 2011 at 8:00. At 22 weeks we went in to find out if we were having a boy or a girl and we found out that we were having a boy but that he may have a birth defect. After an agonizing week we found out that our son had CDH (Congenital Diaphragmatic Hernia). CDH occurs when the diaphragm fails to fully form, allowing the abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births and a baby with CDH is born every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. This will be a journal of our journey and will allow our family and friends to keep up to date on what is happening with us and our son Brodie. Thanks for your prayers and support!


Friday, September 2, 2011

Yesterday was a difficult day for Brodie. They are confused on what to do for him because all of his X-rays and echos show that he has been improving but he doesn't seem to be increasing his blood gas numbers and oxygen saturation. They told us that it was just going to to take a little while for him to get back to where he needed to be. They were going to stay the course and see how he did. The day team switched out with the night team and we met the most amazing nurse. In just a few short moments we knew Brodie was in great hands. Because we thought he was in great hands we left to go home around 8:45 so that we could sleep in our own bed. We went home and ate something and hopped into be at around 10:45 and we called to check on him and the nurse said his numbers were not great but that they had gotten better. Then she said hold on the nurse practitioner wanted to speak with you. LaVona put me on with her and the night went south from there. She said they thought maybe he had a mucous plug in his breathing tube so they were going to do a fairly risky procedure to get it out if there is one. She said that if this does not change his numbers that he could deteriorate and they may have to call us in. They said there is a possibility that in his current state he would never recover. I then asked her if we had reached this point an she said yes. This goes against all we have been told from the day team. The day team are neonatal doctors, surgery, pulmonary, neurology and respiratory. They collaborate and come up with the best solution based on how he has been doing. I tried to let her know unless it was urgent that we would like to wait until morning to see what the team wanted. She pushed on and said there were doing the procedure at midnight. We sprung out of bed got dressed and rushed to the hospital. When we got there they were calling in a bunch of people to help with the procedure and we patiently demanded to talk to the attending physician. He said nothing else was working so they thought this might. We went back and forth and I let him know of the thoughts of the doctors on the day team and he finally agreed to wait until morning as long as his lactate levels were good. This was the hardest thing I had ever done as a father. To step in and tell a doctor that I didn't agree with his opinion was not only hard because he is a trained professional and most of all because I did not want to get in the way of the care of my child. I truly felt in my heart that if they would have done the procedure that we would be burying Brodie. I was not ready and it was time for me to fight for him. They ended up giving him heavy sedation and his oxygen saturation went from the low 70's to 89. We will be going to rounds this morning and I am very anxious to hear what they have to say. I also just pray that they don't tell me that I should have let them do the procedure. We all have alot of fight left in us so I am not ready throw in the towel yet. A special thank you to our nurse last night. God put here there for us last night and without her last night would have been far more difficult. Allison you are amazing and we will forever be thankful. We have a busy day ahead but the nurse set us up with the Ronald McDonald house. After 44 hours with no sleep we finally just crashed. We need your prayers more than ever today. Sorry this one was so long and I will post something after rounds.

4 comments:

Sonny and Bernadette said...

Praying for healing for Brodie and for strength for mommy and daddy. Lord thank you for sending Allison to this family...what a blessing! Keep up the fight little man...we are pulling for you and praying constantly for your healing.

Diane said...

Continued prayers for healing and strength for all of you and that today have positives, even small ones. Hang in there and keep fighting with and for your precious Brodie.

Lindsey said...

Stay strong and we will continue to pray for you all and Brodie. Keep close to God and ask him for strength.

Anonymous said...

I'm praying for these things. 1) Brodie is in no pain. 2) the Dr.'s and nurses and their magical hands. 3) for you and LaVona to stay strong and 4) Brodie to stay strong and heal peacefully in the process.

#3 will come to you when needed.

Love and light,
Liz