Saturday, September 3, 2011
Get Me Off of this Rollercoaster
Today started good and we thought it was going to be a laid back day. We couldn't have been more wrong. LaVona went and picked up Bradie and then we went to lunch. We got back from lunch and walked in to chaos. All we could see when we rounded the corner was a room full of doctors over Brodie. We looked at his oxygen saturation on the monitor and it was around 78%. The doctors were working on him and not telling us what was going on. They then started to bag (hand ventilate) him so we got very concerned. We soon found out that they were trying to get some mucous out. They ended up getting quite a bit from his mouth but not the tube. His numbers got better but then they went down some again. They changed a setting on the oscillator and we went to get Bradie squared away. About thirty minutes later we were coming back to his room and we could see from far away that he was in the 90's. When we got into the room we noticed that he was 95 again. He has stayed that way for the past 20 minutes we have been here so hopefully he will stay on this track. We can't quite understand how things can change so quick. I am sure that the nurses think that we are nuts at this point but you just don't understand how emotionally draining each dip is and what it takes out of us. You just know that there are going to be dips but each one blindsides you just as much as the first. Please pray for Brodie and our sanity. I should probably swing by the heart doctor sometime this week to make sure my ticker is still good. In the last almost four weeks it has felt much excitement, pain, love and been broken. I am not sure how much it can take but judging by the past it will need to endure much more to make it through. Hope everyone is having a great weekend.
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4 comments:
I know this is impossible to do....but try it. Stop watching your monitor.
We had all of the supplies of the NICU and the step down unit in our corner of the unit. Large refridgerators with glass doors. I somehow memorized every fridge, every shelf, everything in them. To the point I would recite theshelves to my husband on the way to and from the hospital. Again, I know it will be impossible, but take a book or something to keep you occupied.....instead of staring at the monitor and listening to every single beep.
We still continue to pray and Brodie has made our prayer list at church.....power of prayer is an amazing thing.
Love and light, Liz
hi my son to was dignosed with cdh i know what your going threw it hard and it seems like you will never leave..i hated that roller coaster after my son had his surgery he was doing real well theytook him off the oscillator before his surgery so he was on conventional one and he was doing so well he was breathing room air so they decided to extubate him he failed..i left the hospital in tears and when i came back there he was on the oscillator again my heart sunk.. but 4days later he was ready to be extubate and he passed a week later he was breathing all on his own so when u think ur going down thes little cherubs fite and go back up again..my son was born 6 21 11 came home 8 9 11 u be amazed ur son is gonna fite for u my son faught he wanted to come home with mommie so he did.and urs will to..
Hi LaVona and Todd,
I think the first anonymous poster is right, bring a book, your bible, a newspaper and read aloud to Brodie and try not to focus on the monitors. The doctors and nurses are doing that and your voice will stimulate little Brodie's brain, just as your touch does. I know this is all easier said than done, especially since I'm not in your shoes, but it may help you.
Prayers and cyber hugs are sent your way.
Todd and LaVonna,
I read your blog daily and keep you all in my thoughts and prayers! I pray you all get some rest tonight and he keeps his numbers stable. I would love to see pics of our growing little boy! Hugs to you all!
Amy Word
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