Finally got some Sleep

Happy Labor Day to everyone. Brodie did well through the night and into the morning. They were able to wean his oxygen down to it's current level of 88%. His oxygen saturation has been around 92-94 so he seems to be tolerating slight changes. This is progress but we have a long long way to go and they are going to do it slowly. The unsettling part of his current condition is that he requires very heavy sedation to get him to this point. When he starts to wake up his numbers go down and they have to give him a paralyzing medication to stop him from breathing over the oscillator and moving too much. Also, the thing that hurts our hearts is that he is retaining fluid and most of it is collecting on his sides and head. He doesn't even look like himself anymore. He is also losing his hair. We knew before he was born that he would lose his hair eventually but we though it would be 30 years from now. Overall, even though he is still very sick and has lots of hurdles to go over we are pleased with his progress. We are just dying to hold him again so we are hoping that within the next couple of weeks he can get better so that we an hold him again. We were finally able to get a normal nights sleep so were are feeling better but definitely not refreshed. Hope everyone has a great Labor Day and thanks for your prayers for Brodie and support for us.