Morning Frustration

Last night we left the hospital around 8 and Brodie was doing good.  We called a few times through the night and he was doing even better.  His oxygen got down to 68% and we thought that maybe this medicine was helping things a little.  I called this morning around 6 to see how he was doing and they said he was doing great.  By the time we got here his oxygen saturation was in the 70's so they eventually had to turn his oxygen back up to 100%.  This was upsetting but seems to be the new norm.  His oxygen saturation got back up to 95% but during rounds I noticed it starting to go down pretty fast.  When it got down to 91 I nudged LaVona and she went in to his room.  A couple of minutes later he was down into the mid 50's and they began to bag him.  This was scary for us because he had not been that low in a while.  They eventually got him back to where he needed to be but as I type this they keep messing with him.  At this point I just want to scream.  This is so frustrating but I know that this is how it goes.  They are still trying to figure out what the haze in his right lung is and also he has fluid aroung the left lung.  They are giving him blood today and hopefully will just leave him alone.  He does not do well with stimulation but he has been stimulated all morning.  Hopefully things will turn around because I can tell that we are both reaching that point where we are getting frustrated.  Brodie just got a new neighbor and this baby had a set of lungs.  What we wouldn't do to hear Brodie cry like that.  Thanks to all that continue to donate for CDH research.  I never would have imagined that we would have received so much support.  Everyone continues to amaze us with their support.  We never would have dreamed that Brodie could have touched this many lives.  Brodie's blog has been seen by many people in 10 different countries.  Hope everyone has a great day!