Ugh!!!

We came in today and he was back up to 100% oxygen support. His last few blood gas numbers were good but he just can't seem to hold steady on the lower settings. They came in and did an echo on him this morning and that made him very unhappy and it dropped his oxygen saturation down. Again, he did not recover so they had to bump him up to 100% support. He does look really good today and maybe today we can get some good pictures. His breathing tube has been pulling on his upper lip but today he looks comfortable. At this point we look for the smallest positives to hang on to. Today they will do a changing of the doctors and fellows. This is going to be tough because we feel they know our baby best and we just want them here for the duration. LaVona really likes our fellow and the fellow really loves Brodie. The day we got the news of the severity of the brain damage she saw LaVona in the hall and gave her a hug. She said that Brodie meant as much to her as he did to us. We will miss her and are thankful that she was put in our life. I just know that if we could hold Brodie that he would be calm and his numbers would improve but that just isn't reality right now. We are going to continue to fight this battle with Brodie no matter how tired or emotionally drained we get. Please take some time today to pray for Brodie. He is on the edge right now and we need him to start making some progress so we can get him out of here.