Day 3 Morning ECMO Day 2

This is Brodie's home.  You can see his bed behind one of the machines.  As you can see he is hooked up to a lot of machines and there is very little room in there for anything else.  Since he first started ECMO his numbers have been good.  We hesitate to say that he is doing good because he is still so ill but he is at least trending in the right direction.  The good news is that he is starting to have some of his medications decreased and we may lose one machine in the next few hours.  They have scheduled the surgery to repair his diaphragm for tomorrow morning.  His doctor was not sure he was stable enough so he said that the surgeons could schedule it but that if he did not show some improvement they will have to wait.  If you already haven't figured it out anything can change at any moment.  Just when you hear something good you then hear something to take the wind out of your sails and vice versa.  As strange as this sounds I think that this has helped us because we don't get too happy with the good news or too sad on the bad news.  I will say that yesterday was a tough day because there was just too much bad news for one day.  LaVona is not feeling as good today because she pushed herself a little too much yesterday but she plans to get plenty of rest today.  It looks as though we will be in the hospital another night in these luxurious accommodations.  Just please know this his condition is still not good so we need your continued prayers and are thankful for everything.   I will also post a picture of Brodie so that you can see where the ECMO machine goes into his neck.  It pains us to see that he has to go through this so early in life.  One line is in his juglar vein adn the other is in the carotid artery.  He will actually lose this carotid artery and be left with just one.  This could cause development issues and we will for sure have increased follow up due to ECMO.  There will hopefully be not much news until later today.  We think that we have reach the point where no news is good news.  Feel free to ask us any questions on here.