Uneventful Day

Today has been really uneventful for Brodie.  They decided not to make any changes on him today since they have made a few the past couple of days.  The pressures on the ventilator are down and he just has flolan as his only drip.  His oxygen is up to 61% so that is a little bit of a bummer but overall he is hanging in there nicely.  Today has been very boring up here and it makes you realize how crazy things have been the past two months.  Usually there seems to always be something going on but today he has just been sleeping.  It kills LaVona every time he cries because she can't do anything about it.  Even though we can hold him it is a huge process and you can't just pick him up when he starts crying.  I hope that we can get his oxygen back down so that they can start to try weaning the flolan.  As I mentioned in a previous post this medicine is not easy to go home on.  He will have to have a central line and have the medication in a backpack so that it can be constantly be going in him.  Because of this they want to try to get him off of it but we are very scared to wean it because we think that is what helped to get us here.  Thanks again for your prayers and support.  We have been able to raise $2600 for CDH research.  We are matching $2500 and another CDH parent is matching $1000 so we still need $900 to reach our goal.  I can't tell you how great it would feel to be able to write a $7000 check for CDH research.  Thanks to all that have donated and it is not too late to buy a bracelet or donate.  We love hearing the stories of how the bracelets started a conversation and how some of you have been able to share Brodie's stroies with others.  We are so amazed everyday by all of the love and support that were are receiving.  We can't wait until the day that we can bring him home and when we do just know that each of you had a part in bringing our boy home.