Brodie Does Not Like Change

Brodie has been moving in the opposite direction the past day and a half. He is very alert and awake but they have had to go up on his oxygen to the mid 70's. We were anticipating that things would go this way after he came off of the steroids but we were hoping that it would not happen. We need to be thankful for where we are at now because even though it is not as good as a couple of days ago it is far better than where we were at almost two weeks ago. We have been at this for almost two months and the setbacks still hit you hard even when you know they are coming. LaVona called in the middle of the night last night and they said he was on 75% and it just killed us both. It just seems like with each up we think we are going to bring him home and each down that we won't be able to. We know this is not the way we should think but it is so hard to think any other way. The one thing we do know is that whichever way this turns out our lives will never be the same. We talked to a mom that has been here for a month longer than us and she told us not to stress about the bad news because it just lets you know what to pray about. As long as we are here there is still hope and he is getting the best care. Please know that even though we may seem down because of this post we are actually not doing too bad. The doctors seem to think he is just having some issues with some of his medication changes and they are encouraged by the progress of the last week. Hope everyone has a good rest of the day and an even better weekend. Thanks to everyone that has purchased a bracelet and donated for CDH. We will donate the money the week after the 21st so there is still time to help out.