Welcome to our site about our son Brodie Dick who will join our family on August 8, 2011 at 8:00. At 22 weeks we went in to find out if we were having a boy or a girl and we found out that we were having a boy but that he may have a birth defect. After an agonizing week we found out that our son had CDH (Congenital Diaphragmatic Hernia). CDH occurs when the diaphragm fails to fully form, allowing the abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births and a baby with CDH is born every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. This will be a journal of our journey and will allow our family and friends to keep up to date on what is happening with us and our son Brodie. Thanks for your prayers and support!
Saturday, October 15, 2011
Keep it up Brodie
Today started out good for Brodie but for the last few hours he has been up and down. We think that it is because of his secretions and his withdrawals. His oxygen has been in the 40's most of the day but he seems uncomfortable at times. I think it is time to up his dose of methadone. LaVona got to hold him for over an hour so she was excited about that but also stressed because he gagged and choked a couple of times while she was holding him. Yesterday was interesting day to say the least. He was really up and down because of all of his secretions and agitation. Before I tell this next story I would like to preface it by saying that our experience at Texas Childrens has been amazing and we have received nothing but the best care. The doctors and nurses here are amazing and we don't know if Brodie would have made it this far if he was somewhere else. Yesterday Brodie needed an X-ray because he was so up and down and because of all his secretions so he got it done around 4. After his X-ray we heard his nurse gasp and run to get another nurse. They looked at it and soon after the nurse and the nurse practitioner came in and said they had bad news. They then told us that his patch had separated and they would need to fix it because his stomach was back in his chest. We were shocked but knew that it could be fixed and hoped that Brodie was stable enough to make it through. They called the surgeon and all the doctors were over. The attending called the fellow and told her that she needed to look at the X-ray since she was on for the night. When she looked at it she said, "that is the X-ray for the baby next door". Apparently the tech had labeled the X-rays wrong and the baby next door that recently had been admitted had CDH. You can imagine how happy we were that this was a mistake and that Brodie was still good. The great thing is that we have been on such a rollercoaster that bad news does not hit us like it used to. It is not that we don't care it is just that we have grown to trust that everything will be ok. Just another day in the life of the NICU. Thanks for all of your prayers and support. We hope everyone has a great weekend!
Subscribe to:
Post Comments (Atom)
4 comments:
I bet LaVona was excited and nervous to hold him all at the same time. I'm sure it's so great holding her baby boy! Wow...what a terrifying mistake. I'm so happy to hear that it was a mistake for Brodie, though I do feel for the parents who received that news of their child. I hope you all stay strong. You are always in our thoughts and prayers!
So happy to hear LaVona got to hold her sweet baby boy again! We are still praying for you guys everyday...especially for Brodie! Stay strong little guy and keep fighting. I pray he continues to progress in the right direction. That is scary about the mistake, but God is in control...he is watching over Brodie and protecting him. I agree with you guys that Brodie is in the best place possible right now. I will pray for wisdom and discernment for the medical staff working with Brodie as well. Love and Hugs sent your way!!
PRAISE GOD for the great news b/c without God, none of this is possible. We continue to pray for Brodie everyday at 11:05a.m. & are also praying for the other NICU baby with CDH. If possible, could you give us the name of the other baby so we can add the name in our 11:05a.m. prayers? Thank you and as always ALL THE GLORY BE ONLY TO GOD THE ALMIGHTY! God Bless.
Praying every day is a baby holding day! Praying for the baby next door, too. Praying you and your family will receive peace and the strength you need each moment of this faith walk. Hebrews 11:1
Faith is being sure of what we hope for and certain of what we do not see. May your day bless G-d today, Todd.xxoo Fran
Post a Comment