Welcome to our site about our son Brodie Dick who will join our family on August 8, 2011 at 8:00. At 22 weeks we went in to find out if we were having a boy or a girl and we found out that we were having a boy but that he may have a birth defect. After an agonizing week we found out that our son had CDH (Congenital Diaphragmatic Hernia). CDH occurs when the diaphragm fails to fully form, allowing the abdominal organs into the chest cavity and preventing lung growth. CDH occurs in 1 of every 2500 births and a baby with CDH is born every 10 minutes. 50% of babies diagnosed with CDH do not survive. The cause is not known. This will be a journal of our journey and will allow our family and friends to keep up to date on what is happening with us and our son Brodie. Thanks for your prayers and support!
Tuesday, November 8, 2011
Happy 3 Month Birthday
Today is Brodie's 3 month birthday and he has never looked better. Things have been going good and he has been tolerating his flolan wean. They have been going down by 2 every 12 hours and he is down to 20. We are a third of the way there and his doctor wants to see if we can maybe start to wean every eight hours. Hopefully he can get off of it by next week and then they can pull his last line. He has been on 36% oxygen for the last couple of days and he is sucking on a pacifier. They finally stopped paralyzing him yesterday and now he is starting to be more awake. The first trach change went good and it really doesn't seem to bother him. The nurse just got him a bouncy seat So hopefully he can get out of bed and play in that today. He looks so good and I feel like everything is moving in the right direction. Last week we were able to donate $6727 for CDH research to Texas Children's. They are working on some procedures where they will be able to help unborn children with CDH and hopefully families will not have to go through this process. The research and clinical trials are being done by Brodie's surgeon and the doctor that did the study we were involved in during the pregnancy. We are so very thankful for all of the generous donations and can't explain to you how great it felt to write that check knowing we were making a difference. It could not have been done without you and we will never be able to thank you enough. We still have $1000 that is on its way and we had around $200 come in after we donated so we it is all said and done we will probably have donated $8000. Thanks also for supporting us through the really tough times. Brodie is in now way out of the woods but we feel confident that in the next few months we will bring him home. Please continue to pray for his healing and for him to continue his progress. I will get back to updating this a little more often. I have been very tired lately and have just been lazy. A few of you have made comments that I have been slacking so I will step it up. Hope everyone is having a great week and we will keep you updated on the flolan wean.
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5 comments:
Happy 3 month Birthday Brodie!!! I am so proud of you for coming this far. Praise GOD for all the wonderful works and miracles he has performed through Brodie!! HE is so good and awesome! I am very happy to hear Brodie is doing so well and is tolerating the wean off the Flolan. Prayers sent up daily for his continued progress and healing. I am so happy for you all that one day soon you will be taking your precious baby boy home!!! May God continue to bless you all and continue to give you and LaVona the strength to carry through the rest of this amazing journey. You both are an inspiration in your unwavering faith in our Lord and in your unconditional love for your boys! I cant wait to see pics of Brodie in his bouncy seat!! WOW...how awesome to see how far he has come :) Take care...try to get some good rest (is that possible as a parent??) and know that we are all still praying for you. Love and Hugs sent your way...Berna :)
Happy Birthday and God's Blessings to Brodie on his 3 month birthday. All praise and thanks to God for the miracles He has performed and that He will continue to perform for precious Brodie.
Happy 3 month birthday, Brodie! Every post I read, I am amazed at Brodie's progress. That is amazing about the bouncy seat. I'm so happy that he will be able to start experiencing things like that! It will be so great for him to start to be up and about. You will definitely be bringing home your boy. And as far as slacking on posts...DO NOT WORRY! We appreciate any updates we can get but certainly understand how tired you are. Only do what you want to do. Prayers alone give comfort to the fact that we know Brodie is doing good, whether we hear from you or not. You need to rest as much as you can. I hope LaVona is doing well, as well. Again, if you ever need anything, just let me know! I think of you all often and I will continue to pray for Brodie. Congratulations on all of the progress of this roller coaster of 3 months. You are so strong and Brodie has accomplished so much. You must be so proud! Have a wonderful day.
Happy 3 month Brodie! I LOVE the new pictures. Although I have never met this precious little guy I feel like I know him through your blog and am so happy for you that Brodie is doing so well! He is so handsome like his big brother!
What an awesome statement from your doctor that you will be taking him home! You both must have been on cloud nine after hearing that.
Continued prayers for you all~
Jamie
Happy Birthday Brodie and thank you G-d for this gift to his family and friends.! A pacie and a chair! Wow!Just keep sending good news, Todd.Love to all 4 of you...and Bradie--I imagine you and Brodie playing soon. I do! May the LORD continue to shower you with blessings. Jeremiah 33:6 "I will heal my people and will let them enjoy abundant peace and security," says the LORD.
Fran xxoo
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