As I look back on the last 13 months I can definitely see that we have had some difficult times but now I can honestly say that we have made it through the tough times and are happier than ever. We are blessed to have Brodie and are still thankful every day that things worked out the way they did. Here is an update on what has been going on with us. We took the boys out to Disneland all of last week and had a great time. It was great to get away with just the four of us. We had such a wonderful time and for that week life just seemed "normal". Brodie did great on the plane and he even rode all the rides that he was tall enough to ride. He not only went to Disneyland but he also went to the beach, Sea World, and his first baseball game. He laughed and smiled most of the trip and only cried we he got near the Disney characters. Who would have thought that after all he went through that he would have been taking a trip at 13 months. We have been waiting to hear from the doctors about what we are going to about the trach. We finally got the call yesterday that if there are no obstructions found during the bronchoscopy on Monday that they will take out the trach, monitor him overnight and send him home Tuesday trach free. I can't tell you how happy that this makes us. It will not only allow us to get back to a more normal life but we think it will definitely help him out developmentally. If it comes out it is going to be crazy to be able to see his whole neck and always hear him talk, laugh and cry. He has been really progressing lately and the therapists said that they think he will be walking by Christmas. He is showing more of his personality every day and keeps us laughing all the time. We will update you next week on how thing go on Monday and Tuesday. Thanks so much for all of the prayers and we know that without all of you that he never would have made it this far.
1 comment:
My mother found your blog and we've been very inspired by Brodie's story. My son, Timoteo and Brodie have the same birthday - just one year apart. Timoteo had LCDH and is still currently in the hospital but we have a great hope for him to come home soon. He also had to be on ECMO and also strokes in his brain. Ours was more of a "shower" of small strokes so neurology also tells us they aren't sure how it will affect Timoteo's development. Can I link your blog to my site? You can read about Timoteo here: victoryishis.wordpress.com.
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