I am sorry that I have not posted since Brodie's birthday. Brodie has been amazing us daily and we are so thankful that we made it to a year. We had such a great party and thanks to all of you that came to support Brodie and our family. Once Brodie came off the ventilator and oxygen he never looked back. For the past two months he hasn't made much progress but the last couple of weeks he decided it was time to get on the move. He now goes from sitting to his stomach, from lying down to sitting and he has even started to do the military crawl. We are so happy that he is on the move and can't wait to see what he has in store for the next couple of months. If you were to see him you would not know that he had a rough start to his life and that he has had a stroke. Once he gets the trach out he will look like a normal little boy. We have a bronchoscopy scheduled for September 17th and if everything looks good they will possibly take the trach out. We feel that he is ready and would have no problems if they took it out. It sure would be nice to get back to more of a normal life. If he does not get it out then we will have to wait until March or April. If it does not come out now that will be OK too because we never dreamed that he would be where he is right now. We are constantly reminded of what a miracle we have and feel so blessed to have him in our life. I can't imagine what our life would have been like if we would have lost him. He brings so much happiness and joy to our lives and although it has been a tough year we can honestly say that it has been the best. There are so many families of CDH babies that don't get to bring their babies home so we never want to forget how blessed we are. Below I will post a link to the pictures from Brodie's birthday party. I know there are alot but I hope that if you were not able to make it that you will enjoy the pictures. I will let everyone know what we find out about the trach and again we thank each of you for everything you have done for us this past year.
http://www.claytonwallace.com/mp_client/pictures.asp?eventid=0&groupid=225
The password is Todd
If you would like one of the pictures let us know. We will have a cd and be able to print them out.
2 comments:
having been checking for an update...so glad he is doing so well
I have been checking out your blog, as I am expecting my first baby in Feb 2013, and he has been diagnosed with CDH as well. I'm so glad to see that Brodie is doing so well a full year after his birth! Thanks for giving hope to others going through this!
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